Policy · 1h ago
Gene-Editing Therapy Fails in Trial, Child Dies After $800k Cost
A couple paid over $800,000 for an experimental gene-editing therapy for their daughter, who later died. The death occurred in a Chinese trial that was never publicly disclosed. The case raises serious questions about oversight and transparency in gene therapy research.
Meridian48 take
The high cost and tragic outcome highlight the risks of unregulated gene-editing treatments, but the lack of public disclosure undermines trust in clinical trial reporting.
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Couple pay >$800k for a gene-editing therapy for their daughter. She died. →
Hacker News
gene-editingclinical-trials